Check out our Spanish LLS reference guide
Isabela Tobon designed and translated a nationwide reference guide in Spanish for Hispanic communities
This reference guide, swiftly embraced as a national LLS material, showcases complimentary LLS programs for patients and caregivers. Isabela crafted an easily accessible guide, incorporating contemporary QR codes and icons for swift information retrieval. Before the LLS approved it for public use, she ensured the resources were accurately referenced and translated the two page PDF into Spanish.
A kind note from the Manager of Patient & Community Outreach at the LLS below.
"They have officially approved them to be used not just by this region, but across our entire PCO (Patient & Community Outreach) team which is national. I really want to thank you for your vision, your effort and dedication to creating these updated materials. You have a great eye for graphic design.
From my end, I will also be making copies of this to have at our events going forward. So you should see your work, live, at the chester county LTN this month.
BIG BIG Thank You again!
"
-Ruby Nava-Ramos, MPH (she/her/hers) | Manager, Patient & Community Outreach | The Leukemia & Lymphoma Society – Eastern PA/Delaware
You can download, print, or view the nationwide LLS reference guide
Resources
Books
Up for the Fight: How to Advocate for Yourself as You Battle Cancer from a Five-Time Survivor
by Bill C. Potts
In this valuable patient and caregiver guide, author Bill C. Potts, a five-time cancer survivor (including lymphoma four times), tells you everything you need to know to take on this fight. With empathy and honesty, he explains exactly what to expect, and shares lessons and important tips you can put into action all the way from diagnosis to treatment, remission, and cure, as well as how to face setbacks on your road to recovery. Most importantly, you will learn how to advocate for yourself!
For more information: www.billcpotts.com
Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients and Their Loved Ones
by Susan K. Stewart
A comprehensive and easy-to-read book that's a must for patients considering a transplant using donor bone marrow, blood stem cells, or cord blood. The book walks the reader through what to expect before, during, and after the transplant and includes the perspective of patients and caregivers as well.
For more information: http://www.bmtinfonet.org/
Braving Chemo: What to Expect, How to Prepare, and How to Get Through It
by Beverly A. Zavaleta, MD
In Braving Chemo, Harvard-educated physician and cancer survivor Beverly A. Zavaleta MD combines her medical expertise with a survivor’s insight to provide practical advice for both chemotherapy patients and cancer caregivers. This book will give you clear answers to your most urgent questions, such as: what to eat; how to prevent nausea; and how to face tough feelings like the fear of dying. Braving Chemo is a valuable resource about what to expect during chemo, how to minimize the side effects, and how to live life as normally as possible when life itself is on the line.
Author’s website: https://www.beverlyzavaletamd.com
Living with Cancer : A Step-by-Step Guide for Coping Medically and Emotionally with a Serious Diagnosis
by Vicki A. Jackson, MD, MPH, David P. Ryan, MD, and Michelle D. Seaton.
Doctors Vicki A. Jackson and David P. Ryan have crafted a step-by-step guide aimed at helping people with cancer grasp what’s happening to them while coping physically and emotionally with treatment. It is a practical, easy to read, and comprehensive reference covering everything from understanding one’s diagnosis to managing symptoms and side effects and dealing with end-of-life concerns.
For more information: https://www.press.jhu.edu/
Charities + Nonprofits
Blood Cancer Disease Registries
A disease registry collects, manages, and analyzes information on patients with a particular diagnosis over time, including blood and tissue samples, blood counts, symptoms, treatments, medical history, and family medical history. The information collected helps researchers develop new therapies. Registries often contact patients on a regular basis to monitor their illness.